XLH Information Hub
Providing healthcare professionals with the essential tools to identify, diagnose, and manage X-Linked Hypophosphatemia (XLH).
ABOUT XLH INFORMATION HUB
XLH is a rare genetic disorder that requires specialized knowledge for early intervention and long-term management.
The XLH Hub will provide:
Diagnostic Support
Basic knowledge and tools to support reaching an accurate XLH diagnosis
Clinical Management
Insights into optimizing care for both children and adults
Global Connectivity
Links to medical contacts and patient organizations to foster collaboration
WEBINARS
Watch our webinars to explore what the new XLH guidelines mean in practice—covering diagnosis, evaluation, management, monitoring, and multidisciplinary care, including current treatment options.
XLH TOOLKIT
The XLH Toolkit will provide basic knowledge to reach the correct diagnosis of XLH, key elements for the optimisation of management of care, medical contacts to aid in diagnosis and to foster collaboration, and contacts to patient organizations.
Coming soon!
The IHN aims to advance understanding of the science of phosphate homeostasis. This site provides information and resources tailored for healthcare professionals with an interest in diseases related to phosphate metabolism.
MEDICAL AND PATIENT ORGANIZATION CONTACTS
International
North America
Europe
Asia-Pacific
SUPPORTED BY AN UNRESTRICTED EDUCATIONAL GRANT FROM:
